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Among the three patients treated this fall is Susannah, a beautiful 8 year old girl who suffers from a neurodegenerative nano-rare condition. Susannah is receiving a personalized, experimental ASO discovered and developed for her unique mutation.
We are continuously developing new partnerships, new treatments, and solutions to those with nano-rare diseases. Contact us to learn more about our organization.
![text-joinus](https://www.nlorem.org/wp-content/uploads/2022/12/text-joinus.png)
We cannot do
this alone
Together we are changing the world—
one patient at a time
We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.
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