Some of Connor’s favorite things are listening to music, the beach, his adaptive bike, and his two brothers, Chase and Cameron. A few weeks after birth, Connor cried often, rarely slept, and had a lot of gastrointestinal issues and feeding difficulties. At eight months old, he had his first seizure and went on to begin having close to a hundred a day, trialing dozens of ineffective pharmaceuticals, having a feeding tube surgically implanted as he refused to eat, losing his laugh, his smile and the ability to hold up the weight of his own head. He went through an endless barrage of tests, which all came back “normal”. This began a diagnostic odyssey for him and his family that was to last five years.