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Patient Clips

Kuri’s Story: DRPLA

Andrew Andrew Serrano2024-07-10T20:51:19-04:00June 28, 2024|Tags: Created by Hawaii Pacific Neuroscience|

6 minutes

Susannah’s Story

Andrew Andrew Serrano2024-07-10T21:25:58-04:00October 12, 2023|Tags: Created by Biogen|

4 minutes

Hope of a Happy Life for Anna

mikejaram2024-07-10T21:27:41-04:00January 25, 2023|Tags: Created by n-Lorem|

2 minutes

Susannah Receives Personalized Medicine

mikejaram2024-07-10T21:28:12-04:00December 19, 2022|Tags: Created by n-Lorem|

Among the three patients treated this fall is Susannah, a beautiful 8 year old girl who suffers from a neurodegenerative nano-rare condition. Susannah is receiving a personalized, experimental ASO discovered and developed for her unique mutation.

3 minutes

No patient left behind: n-Lorem Foundation

mikejaram2024-07-03T21:26:47-04:00October 26, 2022|Tags: Created by Cytiva|

4 minutes

n-Lorem delivers HOPE and treatment to patients with ultra-rare diseases.

mikejaram2024-07-03T21:27:37-04:00March 30, 2021|Tags: Created by n-Lorem|

4 minutes

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News and media

Patient Clips

We cannot do this alone

We cannot do
this alone